Tech Matters: Using tech for positive social change

On February 16th in Los Altos, California, I shared these thoughts on Robin Seaman’s impact on the world with her family and friends at her Celebration of Life. Robin was beloved by the hundreds, if not thousands, of people who had the honor of coming into direct contact with her. That's the Robin we all collectively know personally. The sister, the aunt, the friend, the mentor. The shining bright spot in our day. A woman with that ineffable quality of elegance. However, I'm here to spotlight the impact Robin had on millions of people who never had the pleasure of meeting her personally. You all might have heard something about Robin’s dedication to helping people with disabilities that affect reading. People with disabilities like blindness, visual impairment, dyslexia, physical limitations and returning vets with brain injuries -- anyone who cannot simply pick up a printed book and read it. The nonprofit Benetech team built the revolutionary Bookshare library for thi...

There’s a global book famine afflicting people with disabilities. They lack the books they need for education, employment, and social inclusion. Billions have been spent addressing the problem over the past decade. I have good news: For $5 million a year, we can build a global library that provides tens of millions of people around the world who are blind, low vision, or dyslexic free access to books that will work for them. Benetech has already solved this problem for students in the United States. Our Bookshare library has over 550,000 books that have been delivered digitally over 10 million times. Bookshare adapts to the needs of all readers with a disability that makes reading hard, whether they read with their eyes, ears, or fingers. We’re already delivering services at scale in three other countries—Canada, the UK, and India. Very few philanthropic opportunities come with the chance to solve a global problem with modest risk. This one does. We just need the resources ...

The United States Senate has a terrific opportunity to expand opportunity The United States Senate has just been presented with the ratification package for the Marrakesh Treaty. We are joining with our peers in the disability and library community in a joint statement to strongly encourage the Senate to ratify the treaty and for Congress to implement the minor legislative changes recommended as part of the package. We know a great deal about this Treaty, which is designed to help people who are blind or have other disabilities that interfere with reading, such as dyslexia. Our nonprofit organization operates Bookshare , the largest online library in the world that focuses on the needs of people with these disabilities. The creation of Bookshare was made possible because of an enlightened copyright law exception. And, that American copyright exception was the inspiration for the Marrakesh Treaty! Because the Marrakesh Treaty was modeled after the Chafee Amendment, as the Sect...

If you can buy a book, you can’t borrow it.  That’s the lobbying position of some companies in the intellectual property field when implementing the new Marrakesh Copyright Treaty. Marrakesh is intended to end the book famine for people who can’t read regular books because of their disability. Libraries for people who are blind or dyslexic are the primary source of accessible books in audio, large print or braille. But, some companies want to empty the library shelves and insist that only books that can’t be purchased are allowed to be stocked in such libraries. Imagine what a regular library would look like if it couldn’t stock books that could be purchased by the general public! That would pretty much defeat the purpose of having a library. As the founder of the largest library for people who are blind or who have other significant disabilities that prevent them from reading printed texts (such as dyslexia or brain injuries), I think this is a terrible idea. Since people...

The World Blind Union’s ( WBU ) Right to Read campaign for ratification of the Marrakesh Treaty just concluded two days of meetings in Berlin, Germany. The attendees were mostly the regional coordinators of the campaign, and the news was good. I found the optimism exciting: it seems like we’re moving quickly to getting twenty countries to ratify the Treaty. It even seems likely that it could happen in 2015! A highlight of the meeting for me was going through the list of countries that have already ratified, will or probably will ratify (in WBU’s opinion), and those that possibly will ratify in 2015. The score: Have ratified = 8 Will or Probably Will = 14 Possible = 17 The Treaty goes into effect three months after 20 ratifications have been formally deposited with WIPO, so it’s looking great! The hope is to be able to celebrate the milestone globally on December 10, 2015, Human Rights Day. In North America, Canada was rated as “probable” and the USA as a “possible.” There...

Tomorrow is an exciting day for our Bookshare online library for students with dyslexia or visual impairments.  We have incredibly generous matching grants from two of our dedicated tech entrepreneur supporters, Bernie Newcomb and Lata Krishnan.  Tomorrow, Tuesday May 5, 2015, is Silicon Valley Gives day, where donors from around the world will find their contributions to organizations based here matched by local donors. We love reading, and we know how important being able to read a book is to educational and employment opportunity.  Each year, we provide more than a million books that are spoken aloud, enlarged or made into braille for students who can't pick up a print book and read it because of a disability. We've never done a crowdfunding campaign specifically for Bookshare, and tomorrow we'll find out if some of our 350,000 users and their families are able to express their appreciation by helping match these challenge grants. And we need help: our annual fede...

What is it like for a nonprofit to have a successful, lasting partnership with a private philanthropic foundation? And what are some of the social benefits and impact that may result from such a relationship? At Benetech, we’re fortunate to have had long-time support from funders who have been willing to bet on us. One foundation that has been a committed supporter of our work is the Lavelle Fund for the Blind . I’d like to share our experience with Lavelle, where they took a series of calculated risks in grantmaking. The Lavelle Fund exemplifies the tremendous social return that bold philanthropy can create. Embracing measured risk, The Fund has been willing to make early bets on Benetech, and has repeatedly chosen to invest in our prototype projects. These projects ended up becoming successful and found sustainable funding streams, allowing the innovation to go to scale without needing continued funding from Lavelle. That’s what a lot of foundations would love to see happen: i...

One year ago, on June 28, 2013, at a diplomatic conference in Marrakesh, Morocco, the World Intellectual Property Organization ( WIPO ) agreed on a historic international copyright exception for people with print disabilities. Hailed as “the Miracle in Marrakesh,” the  Marrakesh Treaty to Facilitate Access to Published Works for Persons Who Are Blind, Visually Impaired or Otherwise Print Disabled  paves the way to expanding access to books for people with print disabilities and provides the necessary legal framework for authorized organizations, like Benetech and our  Bookshare  initiative, to deliver those books across international borders. As a long-time advocate for a global copyright exception and the founder of Benetech—which I started twenty-five years ago in order to make technology tools to address the needs of people with print disabilities—I was thrilled to become an active player in global diplomacy and witness the adoption and signing of this ...

Two days ago, on Tuesday, June 10, the Second Circuit Court of Appeals in New York made a major ruling that emphasizes the legality of fair use for book digitization. In Authors Guild v. HathiTrust, a unanimous three-judge panel  concluded that digitizing books in order to enhance research and provide access to individuals with print disabilities is lawful on the grounds of fair use —that is, a limitation and exception to the exclusive rights granted by copyright law to the author of a creative work ( Section 107 of the U.S. copyright law). This is an immense victory for fair use as the basis of a balanced intellectual property system, and we, at Benetech, are delighted by it and by its tremendous positive implications for the public interest. What is this court case and why do we care so much about it? As a non-lawyer, let me explain from the point of view of a technologist who cares passionately about accessibility for people with disabilities. The HathiTrust Digital Libr...

I just returned from a spectacular week at this year’s TED conference in Vancouver, Canada. TED gives me the chance to brainstorm with loads of people who gather to discuss ways to change the world through technology and design. Beyond debating the stimulating topics of major talks—such as Edward Snowden’s appearance by telepresence robot and t he response to it by Rick Ledgett , the Deputy Director of the NSA—I spent much of my time speaking about my favorite topic: technology for social good. Of course, that included getting new ideas for software for social good! Idea One: Tackle Indoor Pollution  First, I sat down with the controversial Bjorn Lomberg , also known as the “ Skeptical Environmentalist .” Bjorn has gotten a lot of attention for his recommendations to combat climate change by focusing on improved humanitarian efforts. As an economist, he stresses the need to quantify the impact of humanitarian interventions: for instance, whether a certain effort will bring $5...

Meet Kevin and “Sophia” (who anonymously shared her story with my team). When Kevin was in kindergarten he had an organic brain injury, which forced him to have to relearn everything from walking to using the bathroom. There were several years where Kevin struggled in school because his vision was blurry and this made reading normal size print grueling. He could no longer keep up with his peers in the classroom. One day when Sophia was in fifth grade, she suddenly went blind from an inexplicable disease. Sophia and her family were left confused and concerned about her future in the classroom. Braille books saved her from isolation and she became an insatiable reader. However, she soon encountered the frustrating “accessible book famine” because very few books available were available in Braille. This reality changed when both Kevin and Sophia learned about the accessible online library  Bookshare , an initiative of Silicon Valley technology nonprofit  Benete...

Last September, I wrote a Beneblog post: Objecting to Accessibility Weaseling , about Amazon and other ebook reader makers trying to dodge out on making their devices accessible. This is an update on that fight.  It's always been highly ironic to me that the most natural buyers of ebooks, people with disabilities that make regular print useless, are constantly blocked in getting digital content that will talk to them, show up enlarged or in Braille!  So, last year, Benetech joined with the National Federation of the Blind and over twenty other groups that care about consumers with disabilities to object to an attempt by Amazon and their competitors to secure a permanent exemption from accessibility requirement for many of the ebook readers. Something that particularly bothered the advocates was Amazon's dropping features already in their basic ebook readers in what looked like an attempt to get out of accessibility requirements. This week, in an important decision by t...

The next time you set your digital device of choice to record your favorite show so you can watch it whenever you want, take a moment to be thankful that you’re protected from lawsuits from the entertainment industry. For on January 17, 1984, the Supreme Court of the United States ruled that consumers could tape their favorite TV shows and watch them later without the copyright holder’s consent. Such action, the Court decided, didn’t constitute copyright infringement because it was fair use , that is, a limitation and exception to the exclusive rights granted by copyright law to the author of a creative work. This ruling by the Supreme Court in Sony Corp. of America v. Universal City Studios, Inc., 464 U.S. 417 (1984), also known as the “ Betamax case ”, is a landmark copyright precedent that has had enormous implications for the media economy. It affected every step of the evolution of digital media—from the VCR to the digital video recorder to YouTube. It also underscores just ...